THE WILD RIDE
BACKGROUND:
What is going on with
me - you may have heard through the grape vine -- But this is the horse’s mouth
... so here goes
I have been in the
hospital since Tues at Baptist -- with what I thought was a stomach
issue. Well it is a liver issue - boat of loads of tests being done
- 1 round of parenthesis (fluid drainage) - long story short I have cirrhosis
of the liver - me, the Dr. and my three teams of specialist (knowing about the
cirrhosis) have been putting together a game plan for moving forward based on
an "alcohol liver". My GI team has been baffled all along and have
continued testing, brainstorming and digging for other answers (gut feeling it
was not" alcohol related).
Well, we got some
strange test results back Thursday day -- which has made us take turn in moving
forward and that we might actually be operating with a "non-alcohol
related cirrhosis" (treatable without a transplant - Whew) still cirrhosis
but what is causing it is now is the big question- So lots and lots more
testing moving forward as well as lots of IV's and meds and new game plan …..
All good.
I am in a very good
place with all of this and am in great hands and Erik makes a great Wing Man
heck he has now truly seen the worse of me ….. and it was not pretty!
I am here at least till
Wed/Thur (see note above) - just because of the IV's and the wonderful
compression machine they are using on my legs (I feel like I am getting a day
long massage)
I will send more
details when I have I them.
UPDATE MONDAY 11/7/16:
All good! Every day
gets better and more in the right direction. I feel great -- just some wacky
internal issues that are not so great - but again improving everyday - numbers
keep falling to healthy levels YAY1
It is cirrhosis -
alcohol being 1 of the contributing factors with a few others mixed in -- yet
to be determined exactly what … but NOT HepC.
Diet reco's in place
i.e. the dos and don'ts - good thing is most of the do's I do already - tons of
fruit and veggies and NO preservatives or canned foods. The don’ts I don't any
way - high fatty foods, fried foods. No/Low salt, white sugar, no raw shellfish
-- : (oysters especially UH OH) NO white sugar.
My day departure for
the hospital in still yet tbd -- as we all collect our thoughts for moving
forward. I emphasized to the teams this morning that I would rather have our
ducks in a row and ALL on the same page (and not rush) before departing -so it
may be tomorrow could still be Wednesday. Good thing is I am VERY comfortable.
I do not need any thing
right now unless anyone feels so inclined to donate Marriott points for my
Denver trip in May (I was to be spending this time accruing the
remaining points I need -- not working out that way right now but I am not
NOT going to Denver: )
And on that note
- if anyone needs me to do anything do that I can possibly do from home I
am your gal -- i.e. production estimating/planning, meal
planning/preparation or small catering of any sort, stuffing envelop, starting
seeds for spring - you name it I am open to it ….. And I will let you know when
I up to full speed again -- a lot of determination on this one by this one :
)
Just keep on bringing
on the good vibes : )
And like I said -- All
Good!
UPDATE TUESDAY 11/8/16:
I am staying one more night for
observation (my choice) ….. I am getting the 2nd parenthesis in 20 minutes and
then they are going to adjust my meds (actually increase my water pills). I
could go home at 6:00pm but then they wanted me back very very very early in
the am - so it is easier to just stay one more night : ) Then some solid quiet
time before the election coverage : ) May the dang political ads end please!
BringonA Christmas Story.
OK -- the rest of the plan ….. Once out-- I will be coming
in as an outpatient for a while - again for observation and blood tests - while
they have me on the water pills -- they want to watch my kidneys
closely. All still very good and #'s still improving. We are all
just being overly cautious - manly because that is what I have asked for : )
Ain't no messing around here for me : )
The great news of the day .. I found a great local farm to
get my meat from - I need to increase my protein intake and I don't really eat
meat but I think I can from a local farm and I really like these folks - I pick
up my first order on Sat at Cobblestone along with some yummy veggies and going
to make a bunch of broth too - lovin it : )
Thanks for all of the kind words, prayers, hugs, laughs
(yep laughs some times you just do it)
Love to all
UPDATE WEDNESDAY
11/9/16:
Yay I am home! Lots of unanswered questions still - but
"tripling" my dosage last night helped a whole lot!
I go back in for clinic on Friday and then again next
Wednesday - and will continue this for a while.
Whew! Again I am home with E & Hammer - curled in my our
bed with the heated mattress pad and mu diffuser going spouting out YUMMY
lavender essential oil and a lovely piece of flounder waiting me : ) Hee Hee!
Thanks for all of the love, support, hugs & prayers -
I could feel them and still need them -- but man oh man I am so lucky to have
all of you in my life - Love you all so much!
Loving life and I mean literally!
P.S. More to come cause it is not over just a hell of a
lot better : )
